Rare Disease Day 2020
28 February 2020, 8:30 - approx. 15:00
Graz, Austria (location tba)
The Rare Disease Day takes place on the last day of February each year. The main objective of the Rare Disease Day is to raise awareness about rare diseases and their impact on patients' lives amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest.
Building awareness of rare diseases is important because 1 in 20 people will live with a rare disease at some point in their life. Despite this, there is no cure for the majority of rare diseases and many go undiagnosed. The Rare Disease Day improves knowledge amongst the general public of rare diseases while encouraging researchers and decision makers to address the needs of those living with rare diseases.
The campaign started as an European event and has progressively become a world phenomenon, with the USA joining in 2009 and participation in over 100 countries all over the world in 2019. For more information on the campaign please visit www.rarediseaseday.org
In 2020, BioNanoNet will co-organise an event in Graz, Austria, bringing together experts from different areas and facilitating interesting presentations and knowledge exchange.
Save the date for this event and stay tuned! Further information will be provided soon.
To register, please fill in the form below: